PKU drug to be made available to Irish patients at third time of asking
HSE has agreed to reimburse Kuvan for up to 20pc of patients with rare metabolic disorder
PKU: ‘At first, I thought I was the only one feeling like this’
Failure to keep diet in check can result in anxiety, memory loss and tiredness
Drug for PKU to be withheld by HSE on cost grounds
Kuvan is the only drug treatment for rare metabolic ‘heel prick test’ disorder
Meet the children who can't eat a plate of chips
Living with PKU: Families call for genetic disorder drug that is available in UK as highly restricted diet to hard to follow
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