Why families had to protest and even litigate to get Skyclarys for Friedreich’s ataxia
But high-cost drugs can damage our health system by denying treatments to other patients
National Centre for Pharmacoeconomics (NCPE)
HSE decision on Friederich’s ataxia welcome, but highlights ever-present conundrum
Amid demand for best-in-class drugs, the State’s medicine bill is approaching €4bn annually
Friedreich’s ataxia patients await HSE funding decision: ‘It shouldn’t come to money’
Patients and families are calling on the HSE to fund Skyclarys, a treatment they say could help slow progression of the rare disease
FG TDs ask firm behind Friedreich’s ataxia drug to consider compassionate access scheme
Meeting held with representatives from Biogen, which makes drug Skyclarys
Co Kilkenny woman diagnosed with rare disease sues HSE over access to drug
Emily Felix (28) was 12 when she was diagnosed with Friedreich’s ataxia, a progressive neuromuscular disease
The miracle cancer drug that saves lives but costs €8,086 per dose
Pembro, made by pharma giant MSD, is hailed as a drug that saves and prolongs lives but it comes at an exorbitant cost
‘Full transparency’ needed over drug companies’ payments to healthcare professionals, bodies
Review recommends HSE should highlight it does not support such pharmaceutical industry payments
Weight loss drug Wegovy to cost around €220 a month as supplies go on market in Ireland
Weight loss drug is not yet approved for reimbursement under Drug Payment Scheme or for medical card patients
Wegovy: The obesity ‘wonderdrug’ comes to Ireland, but it will cost you
Novo Nordisk’s Wegovy is about to enter the Irish market but people will have to pay for it from their own pocket - for now at least
Insurers will not cover obesity drugs that will cost users €2,500-plus a year
Patients looking to access Eli Lilly’s Mounjaro from next week will have to pay privately
Collaborating through gritted teeth
Pharma sector stakeholders still scoring points off each other despite new resources and talk of ‘shared purpose’
Crosswords & Puzzles
Crosswords & puzzles to keep you challenged and entertained
Stardust
Inquests into the nightclub fire that led to the deaths of 48 people
Common Ground
How does a post-Brexit world shape the identity and relationship of these islands
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Weddings, Births, Deaths and other family notices