‘All I want is to save my son’ - mother pleads for drug to help her boy
Lewis Harte diagnosed with the muscular disease when he was two years old
Politicians urged to seek deal on Muscular Dystrophy drug
HSE not funding treatment, costing up to €411,000 a year, due to doubt over clinical benefit
HSE decision not to fund muscular dystrophy drug ‘devastating’
Mother of boy (5) with disorder to appeal to Simon Harris to reverse decision
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